Steve Waugh Foundation - Children and Young Adults with a Rare Disease

The Steve Waugh Foundation supports children and young adults aged 0-25 years who have a rare disease with a prevalence of at least 2:100,000.

The Foundation will consider funding -

• Equipment
• Mobility Aids
• Communication Devices
• Therapy
• Treatment
• Some minor house renovations
• Items that improve the quality of life for the applicant and their family

To be eligible to apply:   

• You must be an Australian Citizen or an Australian permanent resident of at least five years to gain assistance from the Foundation and;
• Have a recognised rare disease as identified on ORPHANET: www.orpha.net, or if not recognised your medical specialist must confirm the disease is rare
• Have an Australian Medicare card
• Have already made an application for government funding assistance for the requested item, eg the NDIS
• The rare disease has been formally and officially diagnosed by a Paediatrician or other Medical Specialist
• You have and can provide evidence of the diagnosis of the rare disease signed off by a Paediatrician or other medical specialist
• You have and can provide medical, health and other documentation or support material required as part of your application