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Steve Waugh Foundation - Children and Young Adults with a Rare Disease

ClosedGrant Opened: 1st of March 2024 Current Round Closed: 31st of March 2024 Run By: Steve Waugh Foundation Further Information: https://www.stevewaughfoundation.com.au/grants/

The Steve Waugh Foundation supports children and young adults aged 0-25 years who have a rare disease with a prevalence of at least 2:100,000.

The Foundation will consider funding -

  • Equipment
  • Mobility Aids
  • Communication Devices
  • Therapy
  • Treatment
  • Some minor house renovations
  • Items that improve the quality of life for the applicant and their family

To be eligible to apply:   

  • You must be an Australian Citizen or an Australian permanent resident of at least five years to gain assistance from the Foundation and;
  • Have a recognised rare disease as identified on ORPHANET: www.orpha.net, or if not recognised your medical specialist must confirm the disease is rare
  • Have an Australian Medicare card
  • Have already made an application for government funding assistance for the requested item, eg the NDIS
  • The rare disease has been formally and officially diagnosed by a Paediatrician or other Medical Specialist
  • You have and can provide evidence of the diagnosis of the rare disease signed off by a Paediatrician or other medical specialist
  • You have and can provide medical, health and other documentation or support material required as part of your application
Last Updated: 29th of October 2023
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Phone02 6771 0700
Opening Hours 9.00am to 5.00pm Monday to Friday
(Except Public Holidays)
Address 143 Marsh Street
Armidale NSW 2350
Postal Address PO Box 72
Armidale NSW 2350
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